Happy Halloween from a very scary cowgirl and teddy

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Hello? David Cameron?

Here’s a question. How is it that a father of a severely disabled child – a father who sees therapists traipse in and out of his house, who changes his son’s diaper even after he is a toddler, who knows his son will never achieve the same basic level of functioning life skills as other [...]

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May you are 2 1/2 years old! Happy Birthday!

I’m an hour early for the celebrations this year. May officially turns 2 1/2 tomorrow, but we are celebrating now with her uncle and aunt who are in from Perth, Australia. What better gift for May’s birthday than two more people around to spoil her! Considering how far May has come, I’m especially excited as [...]

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Can a child have too much therapy?

Monday – Music Therapy and Speech and Language Therapy Tuesday – nada Wednesday – Physio Thursday – nada Friday – Physio and Hydrotherapy Maybe that doesn’t sound like a lot to you. Maybe you are thinking, “Isn’t Stacie on maternity leave? She can fit that all in.” Or, “An hour or two a day, every [...]

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It’s my birthday! 5 things on my wish list

I have a wish list for May. It’s for both of us really because anything that interests her, makes her giggle or helps her be more independent is a gift for me too. My list: 1. A toddler sized Bumbo seat so that May can continue to enjoy sitting as only she knows how. 2. [...]

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In which May contemplates art and religion

In this, the next segment of our continuing series ‘Yes May, but is it art?’, we consider a new exhibition that passed before the newly bespectacled eyes of little May this week. It was not May’s first time at Salisbury Cathedral. She and I enjoyed the cathedral’s tea and scones while I was pregnant and [...]

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Conversations I have against my will

A bit of grrrrrr today. Grrrrrr. Our car was sideswiped while parked about a week ago. Today, the repair company is picking up our car and dropping off a courtesy car as arranged by our insurance company. I asked them if it would be comparable to the car we own. “Do you own a VW [...]

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This week I’m… going private. (Goodbye NHS. Hello massive bills.)

We’ve gone private. I never thought we’d ever do that. Honestly. Because I believe in the NHS. Despite May being born in the care of the NHS and feeling that the birth went wrong, I still believe that she is seen by some of the best medical professionals in the world. Unfortunately, physiotherapy is not [...]

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