Finally. Questions from 2009. Answered.

I often think about the other parents. The ones who are in intensive care wards, or in the “bad news room” at the hospital awaiting results. The ones who are sitting next to incubators, who pray, who hope, who despair. We were them once. I had so many questions then. Not medical questions – questions [...]

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This week I’m… adding glasses to May’s cuteness arsenal (Photos!)

Last night, in anticipation of the arrival of May’s glasses today, I asked to my husband, “Do you think the glasses will make a difference?” “No,” he said, bluntly. I made a kind of hmmm sound. The kind of sound wives make to husbands when a “no” isn’t quite a sufficiently long enough response. He looked up [...]

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Was this a scam to lure in special needs families?

A few months ago, I entered a giveaway to receive a free iPad for May. It was the second giveaway the blog, called Marissa’s Bunny, ran. In the first, Mike, the writer of the blog, organized a raffle where for every $1,000 raised, a special needs family would receive a iPad. Tickets cost $2. In [...]

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May’s been nominated! Spread the LOVE!

If you think May is a superhero – if her Superior Power of Cuteness has directed you to read posts when really you should be working, there is no need to thank us. Who needs a job anyway? Mama and May approve of your devotion! Here are a few ways you can spread the LOOOOVE: 1. [...]

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Social Services and the Case of the Respite Request

You know why I love social services so much? Because working with them is an adventure; I never know what to expect next. What fun! Plus, I get to really focus on what May can’t do. That’s something I love doing. Today, a social worker called to confirm an appointment. Her call was the first [...]

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May made me cry today. My amazing half-brained baby.

You’ll have to look closely here. As quickly as I could in such an awkward position, I tried to capture something I’d never seen before. The shaky footage is due to me grabbing my computer, the only thing with a camera to hand. Also, the upload plays at a slightly faster speed than real life [...]

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May needs glasses! Woohoo!

I shouldn’t get too excited. The Prof even told me not to get too excited. (Side Note: You know they are medical big wigs when… everyone calls them The Prof or The Boss.) I took May into Morefields Eye Hospital this week to get her eyes checked. The doctor in charge of the Developmental Vision [...]

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So, David Cameron, your cuts won’t hurt disabled children?

Well, what of their families then? Cuts to local councils make our lives ever more challenging. Here is a simple story to help illustrate this. One, I think, even Tory ministers can understand. Several months ago, we applied for a disabled parking spot to be placed outside our flat. Our road is one of the [...]

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May is very disappointed in Welsh rugby

As a side contribution to the continuing feature ‘Yes, May, but is it Art?‘ we ask May to consider the Welsh rugby team in light of their performance last weekend in the Rugby World Cup. May is an expert in many areas, and what a shame that we haven’t allowed her to voice her opinion [...]

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I left May behind

There is nothing I like more than hugging my May. She is the softest, sweetest smelling child in all the world. She never tires of cuddles in the way that babies, and certainly toddlers, are meant to. She will snuggle with me for all of eternity if I want, and sometimes I do. So, why, [...]

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