Witness the Fitness!

Watch in awe as May prepares for London 2012. She bounces up and down herself. I’m only supporting her. Supporting her almost 16 lbs. Bouncing. Bouncing. All day long. Why aren’t I as fit as she is? (Don’t answer that.)

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Best husband ever!

Here’s where we went: Fariyhill Absolutely gorgeous. Very romantic. May didn’t miss us in the slightest. And, of course, the one thing I forgot to put on the list of infinite solutions to possible baby disasters was missing: How to release the brakes on the stroller. Her Nana figured it out. I don’t think she [...]

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Sneaky Getaway

Tonight, my husband and I abandon May for the night. The entire night. He is taking me away to a surprise location for the evening. May will stay in the loving and spoiling arms of her Nana in Wales. I made out a ridiculously long list of instructions for my MIL. It was so long, [...]

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Chit-chat

From an early age, I chatted endlessly to May. I say early because I really came into my own when we came home. The hospital felt stifling and as a parent you always have someone within range. Nurses are very caring, but their stream of suggestions also instills doubt, or in me, uncomfortable self-consciousness. What’s [...]

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This week I’m… (update)

May’s birthday list of achievements fails to recognize some of her cognitive developments. Of course, I have a totally unbiased assessment of my 0.5 year-old daughter’s cognitive abilities. I find that games, such as Peek-a-Boo (a very technical and complex game of skill), garners more laughter. She also giggles at sounds she likes. Only a [...]

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Happy Six-Month Birthday May!

The little monkey is .5 years old today! Here is a summary of what they definitely knew May would be capable of from birth: breath pee Here is what she can actually do now: breath pee poo hold her head, neck and back up straight and steady guzzle a bottle stand grasping my fingers bounce [...]

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How the British do bad news (edited)

Several days after posting this entry, I felt compelled to take it down. Whenever I write about May’s medical past, it is so personal that entries like the one below feel crass and clumsy in portraying the biting emotions of the time. I’m not really sure what is best – to give a reader snippets [...]

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Squiggles Activity Mat

A couple of posts ago, I mentioned the activity mat, made by Leckey, that May’s physio and OT lent us for use at home. When I flew to the States, it didn’t fit into my luggage, so I left it behind. Instead, I tried to mimic its holds with towels and pillows – a totally [...]

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How far we’ve come

By “how far we’ve come,” I don’t mean London via Detroit, Chicago and Amsterdam, utilizing both trains and planes over the past three days. That is the literal definition. No, what I mean is: “Isn’t it incredible how far we’ve come since May was first diagnosed?” Back when we were still in the hospital, my [...]

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This week I’m… playing peek-a-boo.

Oh, will my partying lifestyle never end! When the physio and OT suggested playing peek-a-boo a couple of weeks back, I didn’t actually think it would work. We think May has trouble with her eyes and certainly she is totally uninterested in toys (a bit of a disturbing concept for me), so I doubted the [...]

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